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General postsHSCT Journey

Day minus 9: third day of stem cell stimulation

door Tanja 14 October 2018
geschreven door Tanja 14 October 2018 1474 views
HSCT Blog - day minus 9

Day -9: I have had 2 evenings with stem cell stimulation injections (G-CSF / Filgrastim / Neupogen) and it is quite intense. 2 More nights to go. Initially I managed to suppress it with regular painkillers. We are here with quite a lot of patients on the A.A. Maximov department of the Pirogov Center, all for an HSCT treatment. With Philippa and Ann, among others, the treatment schedule is practically the same and today we went to visit Amanda at the “Transplantation Department”. She is a week ahead of our schedule and she is now in her chemo process.
It is not nice what we all have to go through here, but at least we are having a good time together!!

Each morning starts with a Prednisone infusion an in the afternoon I can leave the hospital grounds. Yesterday afternoon I went into the city with Simon because Simon indicated that I really had to see the beautiful church “Cathedral of Christ the Savior”, recognizable by the beautiful golden roof. I have to admit, it’s so beautiful! Because of the weekend, the entire bridge towards the church was filled with a huge line of people who wanted to go inside. I haven’t been in it, but to be honest I am guessing that I am just too weak for that anyway now. I think it’s just great that I’ve seen it on the outside.

This Sunday afternoon I went to the supermarket for the last time. Very clever to take a good look at what groceries are available so that I can give Simon instructions later on what he can get for me when I can no longer leave the hospital grounds. Tomorrow on the 4th and last day of the stem cell injections, the first neckline will be placed and due to the risk of infection I will no longer be allowed to leave the hospital from tomorrow until the end of the treatment.

In the evening before my 3rd injection, the combination of bone pain and fatigue (because I’ve been sightseeing with Simon quite a lot the past few days) it really starts to work on my emotions. I’m exhausted! As a pulsating pain you feel the millions of stem cells flowing out of your bones into your bloodstream, and that is no fun. And ‘right on time’ I happened to receive a super sweet video phone call from Lilian who is already in isolation. Lilian is also Dutch and her schedule is 2 weeks ahead of me. Her husband Rob is staying at the Vega hotel just like Simon. Quite handy actually when our relatives who came with us, our ‘carers’, all stay at the Izmailovo hotels. That way they can still do things together and come to the hospital together when we patients are no longer allowed to leave the site.

Anyway, tonight I had a bit of a hard time. But we have to do what we have to do. “Tears will cleanse your soul”. Just straighten your back, wipe your tears away and let’s continue. The nurse has given me a strong painkiller shot, and now I have to wait again for the next round of stimulation injections in 2 hours. It’ll be fine.

 

Extra explanation on the photos: When Simon drops me off at the hospital in the evening you can recognize my room 409 by the blue window / blue light. 🙂 Only the first week I stay on the 4th floor until rooms are available again in the transplant department. The rooms on the 4th floor are not part of the transplant department. When I just came in, I thought, why do all the devices look so old and yellowed? (Kettle, microwave). As I discovered, above the room door a lamp is mounted which emits the blue light. This is a disinfecting light that makes the entire room sterile and is only on when there are no people in the room. So as soon as I leave it is turned on and as soon as I return in the room it will be turned off. Funny fact to share with you. 😉

 

Click on the images to open the gallery including explanations:

Day minus 9: third day of stem cell stimulationDay minus 9: third day of stem cell stimulationDay minus 9: third day of stem cell stimulationDay minus 9: third day of stem cell stimulationDay minus 9: third day of stem cell stimulationDay minus 9: third day of stem cell stimulationDay minus 9: third day of stem cell stimulationDay minus 9: third day of stem cell stimulationDay minus 9: third day of stem cell stimulationDay minus 9: third day of stem cell stimulation

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AA Maximov HospitalCathedral of Christ the SaviourG-CSFHSCTMSPirogov Centerstem cell stimulationstemsisters
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vorig bericht
Day minus 11: first day of stem cell stimulation injections
volgend bericht
Day minus 8: neckline + fourth day of stem cell stimulation

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Over Mama met MS

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Hoi, ik ben Tanja en Yes! Het is gelukt!

Zoveel lieve mensen wilden mij helpen in mijn strijd tegen MS. Het streefbedrag is gehaald en in oktober 2018 ben ik naar Moskou afgereisd voor een stamceltransplantatie. Inmiddels ben ik thuis aan het herstellen en zal deze website over een poosje worden bijgewerkt.

 

Met liefs, Tanja

Recente Berichten

  • Samantha’s day

    30 April 2019
  • Rollercoaster – almost 5 months post HSCT

    2 April 2019
  • Walking improvements – Before and After HSCT (3+ months)

    27 February 2019
  • Day minus 1: resting day(s)

    22 October 2018

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  • Hey grappig. Naast het ED ben ik ook in het Brabants Dagblad gespot. Hier is het artikel makkelijker te lezen dan vanaf de foto gisteren. Nieuwe mindset voor 2021: "Tout est possible" Link in reacties. #tshirt #toutestpossible #BD #brabantsdagblad #krant #HSCT #postHSCT #MSawareness #PTSS #strongerthanMS #sterkerdanMS #MSwarrior
  • Wie heeft het ED al gespot? In het kader "Tell the story of the mountain you have climbed. It could be a page in someone else
  • "Muscle memory. It
  • Vet irritant dit Het gaat best wel goed eigenlijk, maar dat trillende rechter bovenbeen kan best wel een belemmering zijn. Bijna dagelijks last van. Soms meer, dan weer minder. Het goede nieuws is dat we een lockdown hebben, dus ik hoef de deur toch niet uit. #omdenken #MSlife #MamaMetMS #MSwarrior #lifewithMS
  • Wat een topper! Sarah is goed op dreef met HSCT op de kaart zetten! ---- REPOST van @saarki ---- EN DAN STA JE IN DE PRIVÉ Van het een komt het ander. Je leert mensen kennen die je weer in contact brengen met andere mensen en voordat je het doorhebt staat je verhaal 2 pagina
  • #Repost @nationaalmsfonds • • • • • • KIJKTIP! In het nieuwe RTL4-programma Over Winnaars maken mensen met een fysieke beperking of ingrijpende ziekte het onmogelijke mogelijk. In de uitzending van vanavond is de 36-jarige Sarah Kingma te zien. Zij krijgt op haar 22ste MS. De eerste jaren heeft zij een milde vorm, maar sinds een paar jaar zit zij in een rolstoel. De extraverte Sarah droomt ervan te shinen op een podium. Jamai daagt haar uit en reist samen met Sarah naar Las Vegas, waar zij mag optreden in een show van Hans Klok. Nieuwsgierig? Over Winnaars is vanavond
  • Yay! It
  • Poeh, 2 jaar geleden alweer. Stamcellen oogsten in Moskou. Heavy shit was dat, maar ja. Wat moet, dat moet. Best choice ever. ___________________________ 16-10-2018: Day -7: Harvesting day! In alle vroegte was Dr. F. de machines al voor ons klaar aan het zetten. Na 4 dgn van stamcel stimulatie injecties is vandaag in alle vroegte het oogsten van de stamcellen begonnen: 2 miljoen per kg lichaamsgewicht dus voor mijn 58 kg moeten dat er 116 miljoen worden. Alle stamcellen die de afgelopen dagen uit mn botweefsel
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