Yes there is something going on… In February we started the Mama with MS Foundation and for a good reason. Okay, here he goes, with a knot in my stomach … 2 turbulent months have past with lots of organizing and administration. Finally everything is completed now and the new website can go live!
In parallel with all the organizing, it was a ‘big deal’ mentally as well. There were sleepless nights, because of what is going on. Filled with emotions I wrote a poem some weeks ago in the middle of the night. Would you like to read it?
I have pondered
I have cried
I have talked
I have weighed
I have doubted
I backed down
I cuddled my children
Caressed their hair
But then also decided
There is no other way.
Enough is enough
Waiting is not an option
The time is now
I’ve made my decision
I am going to take a big risk
The plans have been made
I’m going to drop a bomb
I let the genie out of the bottle.
It is going to be a tough fight
This will be my battle
The disease is going too fast
Even though it is not always visible
The disease is marching on.
I took too much
I am sad
I am angry
I am afraid
I am exhausted
But I have a plan
I need a stem cell transplantation
Stop my MS
Until here and no further
Will you help me please?
Original Poem that was shared on social media in Dutch:
