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Stichting Mama met MS

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General postsHSCT Journey

Day minus 15: Introduction at the hospital

door Tanja 8 October 2018
geschreven door Tanja 8 October 2018 31151 views
HSCT Blog - day minus 15

Monday, October 8th, the day that has been circled in my agenda throughout my year. Today I had to show up for the first time at the “Pirogov Center”, at the hematology department called A.A. Maximov Department. At exactly 12 o’clock the taxi showed up in front of the hotel to take us to the hospital. Everything happens right on time overhere, so the driver brought me to the elevator and the lovely Anastasia was already neatly waiting for us at the elevator at the Floor we agreed to meet. So nice that everything is so well organized! Because say for yourself, you are in a foreign country where you do not understand the language, so it is very reassuring when everything is on spot and properly arranged.

 

You could consider Anastasia as the head nurse. She is the assistant to Dr. Fedorenko and she arranges everything for us from the first registration in January to our final departure here to Moscow. The work she does here is really great and what is nice to know is that she herself also underwent this HSCT treatment, I believe 5 years earlier. Now she is dr. Fedorenko’s assistant and a really great support to all patients and caretakers. During all preparations, but also here at the hospital. If you observe her while she is busy doing all these tasks… you can hardly believe that she herself was a patient here.

 

About the first week and a half, room 409 on the 4th floor is my domain. (I will change rooms twice). Anyway, in the first week I will sleep at the hotel together with Simon until Thursday.

  • This first Monday was only an introduction, getting a room and arranging some paperwork.
  • Tomorrow will be busy and loaded with tests and research, so we have to be back here really early.
  • Then there will be a ‘day off’ on Wednesday (so I don’t have to come to the hospital). This extra day is needed to examine all the tests results and so that Dr. Fedorenko can formulate his opinion. Or in other words, I get a very good second opinion from a Top Doctor 😉
  • Thursday we will come back to the hospital for the results! That will be an exciting day of course!

 

In summary, the first week there will be enough possibilities to do some sightseeing in the beautiful Moscow and to have some quality time together with Simon. I want to stay together in the hotel as long as possible so that we can have meals together, but also getting in contact with the other family members / caregivers of the other patients. A new group of HSCT patients starts every week so there is quite an overlap of people overthere. For this month of October alone, about 30 (!) HSCT people will cross paths with each other in the hospital. Almost all patients and caregivers book the Vega hotel, so that is also very practical to meet up, helping and supporting each other.

 

Update and explanation of photos: the restaurant on the ground floor of the Vega hotel is highly recommended. It takes some searching because it is in the back, but it is recognizable by the logo with the 2 swans and is called “Gusi-Lebedi”. My favorite dish has turned out to be “Filet Mignon” (steak). We didn’t have time for it, but you could seriously visit just metro stations for a whole day. There are so many and they are really beautiful! Some pictures are included in today’s gallery.

Click on the images to open the gallery including explanations:

Day minus 15: Introduction at the hospitalDay minus 15: Introduction at the hospitalDay minus 15: Introduction at the hospitalDay minus 15: Introduction at the hospitalDay minus 15: Introduction at the hospitalDay minus 15: Introduction at the hospitalDay minus 15: Introduction at the hospitalDay minus 15: Introduction at the hospitalDay minus 15: Introduction at the hospital

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vorig bericht
Day off: Red Square Moscow
volgend bericht
Day minus 14: Full testing day

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Over Mama met MS

Over Mama met MS

Hoi, ik ben Tanja en Yes! Het is gelukt!

Zoveel lieve mensen wilden mij helpen in mijn strijd tegen MS. Het streefbedrag is gehaald en in oktober 2018 ben ik naar Moskou afgereisd voor een stamceltransplantatie. Inmiddels ben ik thuis aan het herstellen en zal deze website over een poosje worden bijgewerkt.

 

Met liefs, Tanja

Recente Berichten

  • Samantha’s day

    30 April 2019
  • Rollercoaster – almost 5 months post HSCT

    2 April 2019
  • Walking improvements – Before and After HSCT (3+ months)

    27 February 2019
  • Day minus 1: resting day(s)

    22 October 2018

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  • Hey grappig. Naast het ED ben ik ook in het Brabants Dagblad gespot. Hier is het artikel makkelijker te lezen dan vanaf de foto gisteren. Nieuwe mindset voor 2021: "Tout est possible" Link in reacties. #tshirt #toutestpossible #BD #brabantsdagblad #krant #HSCT #postHSCT #MSawareness #PTSS #strongerthanMS #sterkerdanMS #MSwarrior
  • Wie heeft het ED al gespot? In het kader "Tell the story of the mountain you have climbed. It could be a page in someone else
  • "Muscle memory. It
  • Vet irritant dit Het gaat best wel goed eigenlijk, maar dat trillende rechter bovenbeen kan best wel een belemmering zijn. Bijna dagelijks last van. Soms meer, dan weer minder. Het goede nieuws is dat we een lockdown hebben, dus ik hoef de deur toch niet uit. #omdenken #MSlife #MamaMetMS #MSwarrior #lifewithMS
  • Wat een topper! Sarah is goed op dreef met HSCT op de kaart zetten! ---- REPOST van @saarki ---- EN DAN STA JE IN DE PRIVÉ Van het een komt het ander. Je leert mensen kennen die je weer in contact brengen met andere mensen en voordat je het doorhebt staat je verhaal 2 pagina
  • #Repost @nationaalmsfonds • • • • • • KIJKTIP! In het nieuwe RTL4-programma Over Winnaars maken mensen met een fysieke beperking of ingrijpende ziekte het onmogelijke mogelijk. In de uitzending van vanavond is de 36-jarige Sarah Kingma te zien. Zij krijgt op haar 22ste MS. De eerste jaren heeft zij een milde vorm, maar sinds een paar jaar zit zij in een rolstoel. De extraverte Sarah droomt ervan te shinen op een podium. Jamai daagt haar uit en reist samen met Sarah naar Las Vegas, waar zij mag optreden in een show van Hans Klok. Nieuwsgierig? Over Winnaars is vanavond
  • Yay! It
  • Poeh, 2 jaar geleden alweer. Stamcellen oogsten in Moskou. Heavy shit was dat, maar ja. Wat moet, dat moet. Best choice ever. ___________________________ 16-10-2018: Day -7: Harvesting day! In alle vroegte was Dr. F. de machines al voor ons klaar aan het zetten. Na 4 dgn van stamcel stimulatie injecties is vandaag in alle vroegte het oogsten van de stamcellen begonnen: 2 miljoen per kg lichaamsgewicht dus voor mijn 58 kg moeten dat er 116 miljoen worden. Alle stamcellen die de afgelopen dagen uit mn botweefsel
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