General posts

Just a little HSCT story fro Russia in between. No, not this time about my own adventure, but now it is Samantha’s turn in Moscow in Russia. Three years ago…

Among the HSCT ‘veterans’, we talk about the so called “HSCT Rollercoaster” which refers to the course of recovery. Last week, I was on my rollercoaster again… incredibly ill with…

Resting day 1 Still quite a bump on the road, but I’m just trying to get through it. The day before yesterday I got the lung machine as an ‘extra…

Yesterday, on chemo day 3 there was no separate update and that was not without reason because I had a serious complication. Today we are on Day -2 (until the…

Dag -5: Today 1st chemo day (out of 4). Today was very tough. I have been very sick, my head was spinning, nauseous and weak. I am unable to get…

Day -6: Good news, enough stem cells were harvested yesterday so I don’t have to harvest a second day but have a ‘resting day’ instead! I am quite happy because…

Day -7: Harvesting day! Early in the morning Dr. Fedorenko is already preparing the machines for us at 6:50 am. After 4 days of stem cell stimulation injections, the harvesting…

What a day! Neckline in the morning, shaving party in the afternoon. ‍Notice any difference?  And we’ve got such an amazing group sticking together pulling everyone through. Today was emotional. Laughing and…

Day -8: So this happened this morning!  Today is the last day (of the 4-day block) of prednisone and stem cell stimulation injections tonight. Early this morning the neckline (neck…